The End Stage Renal Disease (ESRD) Network program places a high priority on promoting patient and family-centered care and improving quality of life for all patients with ESRD. The ESRD Networks promote these goals through activities that enhance patient and family engagement, improve access to medically suitable self-care modalities, including kidney transplantation, and provide appropriate end of life care.

Patient and Family Engagement is a collaborative effort that brings patients, families, caregivers, and health professionals together to improve health and health care. Both ESRD Networks have a Patient and Family Engagement Learning and Action Network (LAN) which, each year, is responsible for developing a Quality Improvement Activity (QIA) and two patient education campaigns that are designed to foster patient and family involvement at the facility level. The LANs are comprised of patients, family members, and health care professionals from within both Networks.

- As a member of the Patient Engagement Learning and Action Network, I appreciate the fact that our patient experiences are being used to help others, and you learn from others’ experiences. – ESRD Patient, Network 8
- I was really excited about the training and education materials provided by my Network to develop Patient and Family Group Meetings in this project (Patient Engagement Learning and Action Network). Peer interaction is the best way to motivate compliance to treatments and learn to live well with ESRD. – Facility Staff, Network 14

Both Networks also have a Patient Advisory Committee (PAC), which is comprised of ESRD patients. Both the PAC and the LAN provide input into both Network’s strategies for promoting patient engagement and closing the gaps in patient education resources. Both Networks provide patient education opportunities through newsletters, posters, brochures and other methods, including collaborating, when possible, on patient meetings and other patient-centered activities.

The ESRD Networks are here to answer patients’ questions and to provide help with any concerns they may have regarding quality of care. If you or someone you know has a question or concern, or if you are looking for specific educational materials that the Networks might be able to provide, please feel free to call your ESRD Network.